Words That Carry On believes in mental health research in which lived experience researchers and advisers work across the research project.

We believe research is done best when it involves people with relevant personal experience that relates to the research being carried out. This is called ‘lived experience’ and a growing number of research teams are choosing this approach.

We also believe in working with the broad clinical, research and lived experience community to identify topics for research which are central to improving the lives of those living with borderline personality disorder and autism.

The process:

• Scoping survey

To select a research topic, first a list of important topics is created with input from professional researchers and the lived experience community.

These are then prioritised using survey techniques and workshops. People with experience of mental health issues, practitioners, family and friends, and the wider concerned community all take part.

This approach proves invaluable in building interest and support for our work. The results are summarised in the In Your Words survey.

• Research project

Words That Carry On requires that those with lived experience are included in the research within the grant bid.

In reality this means that the structure of the project includes lived experience researchers in roles at every level in the project. Advisory, and supervisory panels also include lived experience participants.

• Getting the word out

Transforming research results into usable materials, tools and information is a central part of good research.

A dissemination panel, including lived experience members, and working with the research team, can highlight what works best for which audience, and which channels and platforms will encourage widespread adoption of the findings.

If you are interested to know more about the exciting role of lived experience in mental health research a good introduction would be The McPin Foundation or Mental Health Research Matters.